Hello Again,

Well today is day 80 post transplant and I am feeling great most days. I still have a few days when I am tired pretty much all day. But last wednesday was not one of those days. Geoff and I went to Dave And Busters for dinner and played all kinds of games it was super fun and we can't wait to be able to do it again. So there is not much news to tell we only have to go to the clinic on tuesdays and thursdays to get my blood worked checked and a little fluid and magnesium. We are so excited to be getting close to coming home!

I am taking part in a study which is pretty exciting. What it is, is a study that will hopefully keep the leukemia from coming back for longer or even for good. I get a shot of a low dose chemo for 5 days every 28 days. the way it works is the low dose of chemo finds any residual leukemia and kills it. but it also tags the leukemia with a protein so that the new immune system can recognize them and kill them as well. Sorry if that got a little nerdy I get a little carried away cause it is so cool. Anyway it is exciting and we are glad I am able to be a part of it.

Well we are just sitting and waiting for our 100 days so we can get home. Thank you all for your thoughts and prayers! we love you all.

With all my Love,

Randi

Hello Everyone,

So today is day 56 post transplant. I am feeling really good. I still get a little tired and feel a little weak. I feel better and better everyday. We only have to go to the clinic two days a week for labs and some IV fluids and an antifungal for the pneumonia still. Each time we go my blood counts come up and are almost in normal ranges. We got some great news today. The results from the bone marrow biopsy I had on day 30 post transplant showed that 100% of t-cells and myeloid cells are identical to the donor which is compatible with successful engraftment. All of that means that the transplant is working and there is no leukemia in my bone marrow.

Yesterday we had a great opportunity to share how important it is for people to sign up for the bone marrow registry. KOAT 7 news interviewed my dad and did a little segment on our story on the ten o clock news. it was very nice and they have a link on their website to the bone marrow registry so everyone check it out and also go give blood it's not hard even if your scared they take care of you and I would not be here if it weren't for the kindness and sacrifice of others who gave blood and platelets and of course the stem cells for the transplant. So if you don't normally or regularly give blood I encourage you to start it really is a life saving act that is so appreciated by so many.

Well thank you again for all your thoughts and prayers we could not get through this with out them. I would like to say thank you to KOAT for telling our story and helping us get the word out about how important it is to register. Well we hope you all had a wonderful Christmas and that this wonderful New Year brings joy and happiness to all.

With all my Love,

Randi